Be one of our Champions for a Cure!
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Hope for a Cure 2.0:
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On behalf of A Cure for Sophia and Friends, I’d like to say THANK YOU to the over 300 supporters that helped us fund our second drug repurposing study with Everlum Bio! Your generous support during our last fiscal year has also allowed us to assist one of our worldwide partners, Cure MCOPS12, with initial funding for our biomarker study.
However, we need your help to continue to the next phase of research! Biomarkers are imperative to further study as they are utilized to show measurable characteristics of the body that are signs of normal or abnormal processes, conditions or diseases and are typically a requirement before beginning a clinical trial which would be the next step after our drug repurposing study is complete.
In addition to our biomarker study and further development needs culminating in a clinical trial or off-label use, we are anxiously planning our first in-person MCOPS12 patient conference in Montreal, Canada in the summer of 2025 with our researchers at CHU Sainte-Justine. Since MCOPS12 families are spread throughout the world, the travel expense is significant for many families.
We would like to fund a portion of the conference costs so as many families as possible can join us to learn directly from our top researchers, share feedback and increase patient knowledge while further defining potential treatments that are meaningful and beneficial to our MCOPS12 patients.
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How You Can Be a Champion:
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1. GIVE whatever you can. No amount is too small
2. SHARE on your social media using our campaign hashtag
#ChampionforaCure | #CureMCOPS12 | #RareDiseaseDay | #ACureforSophiaandFriends
3. FOLLOW us and our partner organizations on our social media:
@CureforSophiaandFriends (Facebook), @ACureforSophia (Twitter)
@CureMCOPS12 (Twitter, LinkedIn, Facebook)
@AcureforSienna (Facebook & IG)
4. WORD OF MOUTH tell your friends and families about our cause​​
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Stay Tuned for Updates:
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Stay in the loop as we embark on this journey of hope, progress, and empowerment. Keep an eye on our social media channels for the latest developments.
Follow us at @ACureforSophiaAndFriends on Facebook, @ACureforSophia on Twitter and @CureMCOPS12 on LinkedIn, Twitter, and Facebook
Join us in turning #GivingTuesday into a day of meaningful impact. Your support, whether through donation or advocacy, is a step towards a brighter, more independent future for ALL MCOPS12 patients.
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#ACureforSophiaAndFriends | #ChampionForACure | #CureMCOPS12 | #RareDiseases | #GivingTuesday
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SHARE:
A Cure for Sophia and Friends is currently operating under fiscal sponsorship of Rare Village Foundation, a 501(c)(3) nonprofit organization and your donation is tax-deductible within the guidelines of U.S. law. 100% of collected funds will be used to fund A Cure for Sophia and Friends initiatives.
Be a part of helping us find treatment options and ultimately a cure for every MCOPS12 Patient Worldwide!